Thursday, August 23, 2012

school starts on monday

I try to sound like I'm kidding around when I talk about how excited Joe and I are about Bub going back to school on Monday so I don't sound like a terrible parent.  Then I self-depreciate myself about how I must be a terrible parent to say I'm excited to have Bub back in school.  This tactic usually gets me lots of praise about how much we do for Bub and the challenges we face.  But I don't do it for that reason.  I really do feel bad that I get so excited for Bub to be at school.  and I am happy with how much he loves the routine of school, and the experiences he has there.

But to be honest, I really look forward to the break of not having to be on point 24-7+ while he's home.  And that I think is what I really feel bad about.   I think about parents who have kids that are absolutely non-functional, children that weigh over 80lbs and have the mentality of a 3month old.  When they need a respite, people understand, and it makes ABSOLUTE sense.  and I'm absolutely jealous.
See, look at Bub: he can dress himself, feed himself, can make a few simple meals for himself if left to his own devices, can write a bit, ambulates, can use a toilet properly(when he feels like it) other words, he's pretty functional.  People don't really get that parents of kids like this need a break too.  We should be "fine"

And it's not like w/ normal kids, where you sweet-talk your friends to take your kids for the weekend in exchange for you taking their kids for them some other weekend.  If you ask parents who have a special-needs kid, you know how much MORE you are adding to their plate, so that's not an option.  You can't really ask a friend that has normal kids, because they have NO IDEA NO MATTER HOW MUCH YOU TRY TO EXPLAIN of what they will encounter while your child is in their care.  So that's out.  It's not really fair to beg your family either, they need breaks too.  so you have no one.  it really really sucks.  so you suck it up and hope the next week is a little better, and that there will be less poo to clean up off the floor.

or walls.

or ceiling.

I love my Bub.  I can't wait for Monday!!!!

1 comment:

  1. I wanted to click the "like" button so you would know that I am with you on this one, but that seemed like the wrong thing to do. I don't "like" your I guess I wrote a comment instead. Love you!

    (George started school in July. It is a year round school. I know the relief you are looking forward to.)



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