I've joined a new group on FB for parents and care-providers for children w/ autism. One of the current threads I've been following and commenting on concerns a person who's child was prescribed a drug that is approved for children w/ autism, but the child is under the guideline age/weight, and the purpose of the script is off-label (fyi- that means the use of the drug for that purpose has not been officially studied, nor is it approved for that use by the FDA)
my big beef is that I get really tee-d off by drug companies using desperate parents who PAY THE DRUG COMPANY to basically be experimental subjects. Then these same drug companies turn around and say their pre-release research is soooo expensive that they HAVE to have a monopoly on the drug for 7 years and force people to pay up the wahzoo during those 7 years. and the clincher? those 7 years are also used for research where you, the consumer, are paying the drug company to be a research subject.
What's happening during those 7 years? they are starting the Long term results of extended use of the drug. this is WHY we get drug recalls, and law suits against drug companies because of unforseen drug effects in the general population.
It is the stupidest thing. unless I am dying, I will NEVER take a drug that does not have a generic version.
and now for my vaccine gripe- this is why my kids will NOT EVER get flu shots, H2N2 shots, or the stupid new HPV vaccine shots. MAYBE when they are older, I may let them get a meningitis shot, but I'm still deciding on that one. it's the same reason. these companies RACE to get FDA approval, but they all have little if ANY (H2N2 specifically) research done on them. and Flu shots are hit or miss. they literally guess which strain will be most virulent and make it for that, but there is really no knowing which strain of flu will be most pervasive in any flu season... I really believe unless you have other complications or are at a high risk of infection/respiratory problems, you should ignore the hype. Healthy individuals are very likely able to fight most viral infections well.
I get so mad at how backward this all is.
This started as a way to stay in touch w/ my family/friends in MN when I moved, then morphed into my personal outlet after discovering I'm an autism mom. I do talk about other stuff...sometimes....maybe...
Showing posts with label WTF is wrong with people. Show all posts
Showing posts with label WTF is wrong with people. Show all posts
Thursday, September 27, 2012
Wednesday, May 02, 2012
verbalizing, gardens and crazy people
couple of things...
why in the world would anyone take their infant, 3 y/o and a preteen to walmart at 0200 in the morning? what are you thinking? I know I'm not mother of the year, but I value my children's sleep and HIGHLY encourage it on a regular basis. And if the items bought were of an emergency-type nature, I could understand some sort of problem in the home/family that necessitated such a trip w/ little ones, on a school nite...but toddler clothes, and school/art supplies? really? wow. that is a new one for me....
anyhow, I got my container garden going. I have tomatoes, bell peppers, cucumbers, a couple types of lettuce, spinach and 2 zucchinni going. I have no idea if they will survive my ministrations. my attempt at tomatoes last year was abysmal, although I could blame that on the drought if I tried at all.
Bub surprised me yesterday. He wanted me to get something for him, and was trying to pull me up from the couch, I asked him what he wanted momma to do and he signed AND verbalized "go!"
I was so happy with that I don't even remember what he wanted. I think it was kool-aid out of the fridge. and then this morning, Joe asked him if he needed to go to the bathroom before Daddy, and he verbalized "no".
I am a pretty happy girl right now...pretty proud of my Bub. yayee.
:)
Nubs
why in the world would anyone take their infant, 3 y/o and a preteen to walmart at 0200 in the morning? what are you thinking? I know I'm not mother of the year, but I value my children's sleep and HIGHLY encourage it on a regular basis. And if the items bought were of an emergency-type nature, I could understand some sort of problem in the home/family that necessitated such a trip w/ little ones, on a school nite...but toddler clothes, and school/art supplies? really? wow. that is a new one for me....
anyhow, I got my container garden going. I have tomatoes, bell peppers, cucumbers, a couple types of lettuce, spinach and 2 zucchinni going. I have no idea if they will survive my ministrations. my attempt at tomatoes last year was abysmal, although I could blame that on the drought if I tried at all.
Bub surprised me yesterday. He wanted me to get something for him, and was trying to pull me up from the couch, I asked him what he wanted momma to do and he signed AND verbalized "go!"
I was so happy with that I don't even remember what he wanted. I think it was kool-aid out of the fridge. and then this morning, Joe asked him if he needed to go to the bathroom before Daddy, and he verbalized "no".
I am a pretty happy girl right now...pretty proud of my Bub. yayee.
:)
Nubs
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