Saturday, June 30, 2012

autism and being a mom

I stole/copied/borrowed this from my longtime friend and fellow autie mom Jigglypuff:
Autism Strong Mom

At first I was scared and I cried.
And than I looked around.

He was still my child.
I was still his mom.

Autism they said.

Everything seemed different.
But nothing really changed.

He was still my child.
I was still his mom.

Now I no longer cry.

I am an Autism Strong Mom. 

* from the Four Sea Stars Facebook page
This kinda thing upsets me.  I know that seems weird cuz it's obviously supposed to inspire strength and hope and all that jazz.  Not me, don't know why, maybe because I have grown cynical in my 30s, maybe because I cultivated a sarcastic bend in my 20s, who knows, but this pisses me off.
I have yet to met a single autie parent that "no longer cries"  BULL SHIT.  if they put that out they are LYING!!  they are a dirty lying cheat.  or they are the "refrigerator moms" pop psychology believed in for so long.  or they have a crippling addiction to *numbing drug of choice*. 
I will say this and I will stand by it.  No matter how much you love your child, no matter how strong you get, you will cry, you will be angry, you will blame yourself, you will blame your spouse, you will blame anything that makes any kind of reasonable case to have brought this onto your child, you will be flustered, you will be reduced to a crying sobbing heap of person from time to time because of autism.
It won't last.  you will feel better mostly.  Life will become the new normal.  there will be lots of happiness and laughter and love and understanding.  You will feel "autism strong mom"  but it is transitory.  you will only feel it on the "good" days.  
I hope I am not crushing some poor mom who just got a diagnosis and is trying to find something/anything to help her get thru the transition of diagnosis to acceptance.  I don't want to crush you, but neither do I want to lie to you and make you feel like a failure if you don't achieve this level of ...whatever the hell it's trying to set.  Good LORD we have enough problems learning to help our kids, do we have to put up some unrealistic level of acceptance for each other and wave it around other's faces to make us feel better about ourselves while crushing others???  don't we have enough to do other than play HS games?!?   f-that.

I love my son, and I still cry, and I am strong because I'm honest about it.




"

2 comments:

  1. You are very strong.

    You are ttotally spot on. And I do cry. To be fair I didn't like the last two lines, but i felt I couldn't leave them out since the words were not mine.

    ReplyDelete
  2. If the last two lines were dropped, I prolly would like this...
    I know you aren't like the writer, and you are strong! keep on keeping on girl! love you :)

    ReplyDelete

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